How does your money help kids?

Posted on Tue, April 29, 2008 at 06:57PM by Registered CommenterNeil Hutchison | Comments16 Comments

Please watch and listen to this audio slide show —- the children shown are participating in the Phase 1 and Phase 2 trials which were funded by the parents who formed MagicWater Project and Solving Kids Cancer.

Our goal is to help kids today!

Be part of the MagicWater movement!

San Diego - April 17th

Posted on Wed, March 19, 2008 at 03:54PM by Registered CommenterNeil Hutchison | Comments15 Comments

Our next meeting is in San Diego on Thursday, April 17th.  It follows the annual meeting of the American Association of Cancer Research (www.aacr.org) which is in San Diego on April 12th through April 16th. 

Once again, we will have doctors and parents working collaboratively to talk how we can save kids fighting today.  If you would be interested in learning more about what we do and how we do it, please email info@magicwater.org and we will respond promptly.

Our March 2nd post was on personalized medicine.  Since then, MagicWater has made a $74,000 pledge which will help a group of researchers better understand how to help the very sickest kids.  If you have a child with relapsed neuroblastoma or medulloblastoma, we would be happy to share information about the program.

If you had a child with cancer, how hard would you fight?

The Promise of Nanotechnology

Posted on Wed, March 5, 2008 at 05:21PM by Registered CommenterNeil Hutchison | Comments9 Comments | References4 References

How could nanotechnology benefit kids with cancer?  Nanotechnology broadly refers to the field of science that designs devices that are really small, “nanometer small” — one billionth of a meter small. 

One of the uses of nanotechology is that scientists can design buckets or encapsulations to hold the chemotherapeutic agent; these buckets are designed to be attracted to the tumor, not to healthy cells, so they release the chemotherapy primarily at the tumor site. 

What does this mean to kids?  It means less toxicity and better tumor-kill — one of the holy grails of improving care.

Irinotecan (Camptosar) is a very effective agent in the fight against neuroblastoma and has been the subject of many clinical trials.  Below is a link to a Canadian research team that is ready to start clinical trials using a nanotechnology-delivered variant of Irinotecan.   Our radar screen is full of nanotechnology options which offer the promise of a better delivery system.  Please help us fulfill this promise and support our efforts or spread the word about the MagicWater Project.

www.canada.com/victoriatimescolonist/news/story.html?id=046a95e6-70c9-4ee8-a022-5106c15ddbfb

Canary Foundation - helping kids with medulloblastoma

Posted on Mon, March 3, 2008 at 09:35PM by Registered CommenterNeil Hutchison | Comments22 Comments | References7 References

 The Canary Foundation (www.canaryfoundation.org) has a wonderful model —- create simple blood tests that identify cancers at their earliest, most curable stages.  And they are going after some tough cancers  - prostate, ovarian, lung, and pancreatic.

The parents of MagicWater always joke that we don’t care who cures pediatric cancers, we just want kids to live.  With that in mind, we would like to bring attention to Canary Foundation for their commitment to tackle a pediatric cancer - medulloblastoma.  We think it is wonderful.

As you know, MagicWater also has research projects focusing on medulloblastoma and our hope, while we juggle kids in treatment, fulltime jobs, and fundraising, is to work with the Canary Foundation and expand their pediatric cancer programs. 

And we know of another cancer where kids could benefit from earlier detection at initial diagnosis and at relapse  —  neuroblastoma.  So please learn about the wonderful work done by the Canary Foundation and spread the word about MagicWater. 

If you don’t care who gets credit, maybe just maybe, we can save some kids.

From their website:

The founder, Don Listwin, has donated $1,000,000 to The Center for Children’s Brain Tumors at Lucile Packard Children’s Hospital at Stanford.  Scientists at the Center will use the funds to help unlock the molecular origins of medulloblastoma, the most common primary central nervous system tumor that arises in childhood. The gift will provide immediate funding for research that will bring together experienced physicians and scientists who will investigate fundamental mechanisms of medullablastoma; improve imaging methods to detect and analyze the tumors; and explore potential therapies. Medulloblastoma most often strikes children under age 10, and has a survival rate of 60 to 80 percent. 
 

Personalized medicine -- can we save kids today?

Posted on Sun, March 2, 2008 at 04:04PM by Registered CommenterNeil Hutchison | Comments11 Comments | References1 Reference

This press release indicates 2 pediatric onology patients have already been treated using an approach known as morphoproteomics.  In the future, every cancer patient (adult and children) will receive tailored treatments — why don’t we work together to do that TODAY!   A major focus of MagicWater is to ensure that children have access to state-of-the art care.  How hard would you work if your child had cancer?

http://publicaffairs.uth.tmc.edu/media/newsreleases/nr2007/consultativeproteomics.html